Welcome to

A bleeding disorders information resource

This site is a resource for patients, carers and professionals, providing comprehensive information about many of the aspects of haemophilia and related bleeding disorders that you won’t find elsewhere.

On this site you will find:

  • Practical information on haemophilia and other inherited bleeding disorders such as von Willebrand disease, rarer clotting factor deficiencies such as Factor XI deficiency and disorders affecting platelet function
  • Practical advice for patients of all ages, as well as for carriers, partners, family members, teachers, and even employers
  • A wide range of resources, contact details and news about haemophilia and related bleeding disorders.

The North London Adult Haemophilia Network

The network is made up of the Royal Free London Hospital Comprehensive Care Centre (CCC), the Royal London Hospital CCC and Hammersmith Hospital Haemophilia Centre. The Network was launched in April 2011 to share and develop staff expertise and experience to improve the quality and efficiency of services with the overall aim of improving patient experience.

The Network haemophilia teams are working together on a number of different projects covering all aspects of patient care. Nursing and allied healthcare professionals such as physiotherapists and psychologists meet monthly and are developing plans for enhancing community care and links with district general hospitals as well as discussing how to improve access to services such as physiotherapy and counselling. They are also working with Great Ormond Street CCC to look at how to further support teenagers as they move their care to adult centres.

Other areas that the Network centres are developing together include clinical guidelines for patient and service management, audit and research, Network multi-disciplinary team meetings (known as MDTs) and work on developing patient information, haemophilia centre websites and patient education and social events.

The Royal Free The Royal London The Hammersmith Hospital