About bleeding disorders
- About bleeding disorders
  
  Bleeding disorders are rare conditions in which the blood is unable to clot properly. Depending on the condition, bleeding may be spontaneous, or may occur after injury, surgery, trauma or menstruation
Practical Issues In Care
- Practical Issues In Care
  
  Living with a bleeding disorder can affect many aspects of your everyday life. This section gives some hints and tips.
Managing Your Treatment
- Managing Your Treatment
  
  Treatment for bleeding disorders varies depending on the condition and its severity. This section details some of the approaches that may be used.
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Welcome to
Haemophilia
London

A bleeding disorders information resource

This site is a resource for patients, carers and professionals, providing comprehensive information about many of the aspects of haemophilia and related bleeding disorders that you won’t find elsewhere.

On this site you will find:

Practical information on haemophilia and other inherited bleeding disorders such as von Willebrand disease, rarer clotting factor deficiencies such as Factor XI deficiency and disorders affecting platelet function
Practical advice for patients of all ages, as well as for carriers, partners, family members, teachers, and even employers
A wide range of resources, contact details and news about haemophilia and related bleeding disorders.

The Katharine Dormandy Haemophilia and Thrombosis Centre at the Royal Free Hospital offers clinics for diagnosis and management of bleeding disorders. Patients with severe lifelong bleeding disorders have specialist needs and are able to access other services across different disciplines.

The haemophilia team at The Royal London Hospital is a multi-disciplinary team of healthcare professionals who are dedicated to delivering high quality care for people with inherited bleeding disorders. The team is made up of specialist consultants, clinical nurse specialists, a physiotherapist, laboratory specialists and an administrative team.

The adult clinical haematology service at Imperial College Healthcare NHS Trust provides a full range of diagnostic and management services for patients with bleeding disorders. These include severe hereditary disorders such as haemophilia, blood coagulation, thrombosis (clotting), von Willebrand disease and platelet disorders.

The North London Adult Haemophilia Network

The network is made up of the Royal Free London Hospital Comprehensive Care Centre (CCC), the Royal London Hospital CCC and Hammersmith Hospital Haemophilia Centre. The Network was launched in April 2011 to share and develop staff expertise and experience to improve the quality and efﬁciency of services with the overall aim of improving patient experience.

The Network haemophilia teams are working together on a number of different projects covering all aspects of patient care. Nursing and allied healthcare professionals such as physiotherapists and psychologists meet monthly and are developing plans for enhancing community care and links with district general hospitals as well as discussing how to improve access to services such as physiotherapy and counselling. They are also working with Great Ormond Street CCC to look at how to further support teenagers as they move their care to adult centres.

Other areas that the Network centres are developing together include clinical guidelines for patient and service management, audit and research, Network multi-disciplinary team meetings (known as MDTs) and work on developing patient information, haemophilia centre websites and patient education and social events.

The Royal Free The Royal London The Hammersmith Hospital

About Us

The North London Adult Haemophilia Network (NLAHN) was established in 2012.
The members of the network are the haemophilia centres based at:

The Royal Free Hospital
The Royal London Hospital
Hammersmith Hospital
Great Ormond Street Hospital for Children.

The North London Adult Haemophilia Network also provides wider support to the whole of north London and surrounding areas.

Contact Us

North London Adult Haemophilia Network Katharine Dormandy Haemophilia Centre
& Thrombosis Unit
Royal Free London NHS Foundation Trust
Pond Street
London NW3 2QG

Acknowledgements

The content of this website has been developed with the help of many expert clinicians within the North London Adult Haemophilia Network. In particular we would like to thank Louise Bowles, Pratima Chowdary, Nicola Dunn, Keith Gomez, Chris Harrington, Dan Hart, Rezan Kadir, Mike Laffan, Mary Mathias, Ann McCarthy, Paul McLaughlin, Carolyn Millar, John Pasi, Debra Pollard, Thynn Thynn Yee. The North London Adult Haemophilia Network gratefully acknowledges our partners in the pharmaceutical industry for contributing to the establishment and running of this website, in particular: